Topic: What age were you diagnosed? (formal or self-dx)



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Reply by anzovin

posted

I am still undiagnosed, but i am on the waiting list.

it came up in January, when we we're doing fake exams in the hall. I usually do well on tests but on most of them during this i got below 50%. So, my mum and my dad were discussing why and my mum brought up autism, which fits best with how i am. My mum wrote up all the stuff about me like "organising my toys when i was younger" and "never liked change" to the neurodivergency thing, and they said i need to be assessed urgently.

So, I don't know if i'm autistic, but i do think i am.


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Reply by Nookie X3

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I got diagnosed at around 11-12 cause I did my own reasearch and just asked my mom if we could look into it . 


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Reply by littlestpetshop

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discovered myself last year !


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Reply by Olly

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I was diagnosed when I was 12/13, not sure if that's considered like late but I think it is lmao. Ironically I literally had to literally ask/be really persistent about being assessed for it and was aware of it before being diagnosed.


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Reply by MothMomma

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I currently self diagnose due to lack of money (Living in the USA is a pain in my butt :P) but I would say I started doing so around the beginning of this year actually. I started after one of my friends who I had been around for about 3 - 4 months was absolutely shocked that I WASNT autistic because they just assumed I had it. I had already been doing some research into it since I started noticing my cousin acted a lot like I did at his age and i was like "maybe thats not something that most people would relate to" but after a close friend of mine just kinda ASSUMED I had it for like 4 months thats when i went "ok yeah maybe im not just pretending I have it"


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Reply by Ren

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I got diagnosed at 16, but I was self dx-ing when I was 14, late 14,


the waiting list was very long and I only got diagnosed when I was just about to hit 17


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Reply by lizchibi

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15, due to "suddenly" being bad at every class. took till i was 18 for them to mostly get my 'tism


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Reply by finch

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i only started letting people know when i was sixteen, but i realised at some point during lockdown!


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Reply by lexi/matt

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i discovered i was autistic maybe 4 months ago??? (self diagnose pls dont flame me.) my brother is on the spectrum too and hes formally diagnosed, we act nothing alike at all but then again i am afab if theres any difference in that lol. i didnt really think i was but like ive slowly been realizing i have a ton of the symptoms, ive always felt "different" in a way and i think this is why 0_<


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Reply by Sophia♡

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well i mean i got the screening down around july this year, im stuck on the waiting list for ages though but everyone in my family already thinks i have it so we rlly dont need a professional diagnosis LOLZ >.<


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Reply by dylan/mason

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formal at uhh like 4-5 idk


im 13


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Reply by Coom Lord

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Im pretty sure i was 13 when i self dignosed myself i have ADHD and so my mom never got me tested since its alot of money that we dont have and dismisses it for me having ADHD But my it runs in my family my mom and my dads side my older cousing has autism my younger cousin has autism my dad has autism im pretty sure my aunt had it too so it just kinda started adding up idk if this is mean or not but my friends started asking me if i was autistic and i would say no bc i didnt know so we did like some quiz i forgot what it was and it was a serious quiz like idk who ran it if i find it ill send the link and you guys lmk and i got a pretty high score compared to my nurotypical friends but anyways when im older and have enough money ill try to get a proper diagnosis 


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Reply by BubblegumBoy

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updated

I was diagnosed when i was 10 (i'm 22 now)


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Reply by alya™

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my mum and i started to suspect when i was like 12 then i got diagnosed professionally at 14. i'm 17 now


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Reply by Nic

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Only a couple years ago I started having a suspicion I was autistic.  I hadn't thought much of it until then as I've had a couple autistic friends and felt I wasn't like them. Though it turns out it surfaces in different ways for different people. Recently I've come across some old documents from my childhood about some significantly asocial behavior from my toddler years and now I'm pretty certain I have it, it just explains too much for the diagnosis to not be there.  Hyperfixating on subjects, infodumping, the years of sheer effort of learning how to act in ways, both verbal and non-verbal, to make others feel comfortable - its all there.

When life slows down, I really would like to get formally diagnosed. Until then, I've been journaling my history and stories from past caretakers as the closest thing I have to evidence.


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Reply by Sunny Daze

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Reply by benny // whalefall

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i diagnosed myself when i was 18 or so, so in 2017/2018


i got officially diagnosed last year in December, at age 22!


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Reply by ezra

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2 years ago when I was 12, and end of last yr I got dx with adhd randomly HAHIJDUK


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Reply by Evalin

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Around the age of seven, perhaps eight.


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Reply by voraciousKobold

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I got professionally diagnosed when I was 16 or 17. I wish it happened sooner because high-school was rough for me without any IEP and i almost didnt graduate because of how many classes i was failing, speaking of which, if you have had an IEP, how was it? 


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Reply by boy soprano

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Self suspected at 12 or 13, formally diagnosed at 15 


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Reply by lee !!

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It had always been a joke with my family and friends that i was 'special', and then I only really properly thought about it like last year-ish (I'm 16 and afab) I talked to my mum about it and she said "Oh your definitely on the spectrum, but I don't think you need a diagnosis. You just need to learn to live with your quirks !" Which is kinda annoying.


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Reply by danniel <3

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my sibling knew since my birth but it took a while for my parent to clock it lol


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Reply by 🌈 DICE.SYS

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i got diagnosed with autism and adhd when i was 7 or 8 


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Reply by Rois

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i was very fortunate to get diagnosed so early but its only because my mom was diagnosed so late (at 47) so i got my Autism, ADHD, C-PTSD, Dyslexia, Dyscalculia and ARFID diagnoses when i was 7 :3


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Reply by Nyx

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I was 14 but it should have been sooner. i wasn't able to speak until i was 3 and had to go into speech therapy



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Reply by ♱ BECK ♱

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i wanna say i was..,, 13? well, thats when i started thinking about it an recognized some of the symptoms in myself. im not formally diagnosed, mostly because while my momma agrees i fit the criteria and would very likely get the diagnosis if i were to be evaluated, we agree i don't really need the dx at this point in my life. 


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Reply by moosya!!! ☆

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I am going by self-diagnosis for 2 years already since I was 19 y.o. And uhhh I think it actually literally saved my life

I tried to mask really hard since 11-12 and it was a disaster, it was an impossible task for me, lol. I wish I knew sooner bc I really couldn't make any stable relationships. So due to thinking "it is me" in a bad way and not even knowing what's wrong, bad things happened and happened, so I was diagnosed with really bad depression. and ONLY when I started to do research about adhd and autism it finally "started to make sense". and my friends now understand me better too, so at least my problems with maintaining relationships and other people's bad attitude kinda got away. well, maybe not entirely, but at least it got better. it's a pity tho I can't look for diagnosis due to situation with neurodivergences in my country (adults can't get adhd & autism diagnoses officially and also it rans by ICD-10, not ICD-11 or DSM-5)


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Reply by dylan/mason

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got professionally diagnosed at 5


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Reply by Naomi

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I was officially diagnosed at 12 years old because I was too spicy to be just ADHD.


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Reply by SoftyDeluxe

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fairly recently, maybe around 23?? im self-dx. as a kid, several teachers told my parents it might be beneficial to get me screened for autism, but they didn't want to (my dad bc he doesn't trust doctors in general and my mom because she didn't want a diagnosis of anything to hold me back). neither of them told me about any of this until very recently. I wish i had been made aware sooner, i just feel like a lot of things would have made more sense.


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Reply by Wormey

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I was professionally diagnosed at 19, but everyone around me (except my parents..) had been telling them that I was probably autistic since I was 5, it hurts a bit to know that life could've been much easier and I wouldn't have had to go through so much pain if I was just diagnosed earlier rip

But I suppose it's good that I know now at least!! :3c


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Reply by lil_usagi

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Diagnosed myself when I was 17, officially diagnosed this year age 32 


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Reply by paraps / bunsen !

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updated

i'm not entirely sure but i do remember being diagnosed pretty young,, i think i was around 7-8 when i was diagnosed (20 now :P),, also glad to see i'm not the only autistic adult in this group :D


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Reply by xXgirlanachronismXx

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i was formally diagnosed at 17! they made me read a picture book about frogs flying on lily pads and describe it :D the art was actually very beautiful


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Reply by pucho

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10 years old, and i rejected my diagnosis for 7 whole years
i bottled up all that bullshit because internalized abelist beliefs


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Reply by Lonk of Hyrool

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I was 12 and I took a test in middle school. now I have big piece of paper in my closet


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Reply by _skullkingzz

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updated

I think I was around 5 when I was formally diagnosed but I didn't know I was autistic until my mom told me when I was 9


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Reply by nightwingz

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found out when i was about 15, 16? currently chasing a diagnosis. found out my mum knew since i was little and just didnt do anything lol


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Reply by Gh0stPrince

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Prof. Diagnosed when we were probably 4? maybe 5? But we didn't really start to learn what it was until we were about 14-15.


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Reply by Clay ^^

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so haii! im fourteen and i think i went through a lot of trial and error before i realized i had autism, id say it was about a year or two ago, it took me explaining to soooo many professionals before someone regonized that i probably need an eval, my spin is psychology and i think ive read the autism diagnostic criteria about 15 times. I almost got the eval appt, but my insurance didnt answer, I was notified that if they didnt answer the appt would be about 3000 usd, so i guess i self diagnosed officially like a few months ago, but ive known for a hot minute


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Reply by scatterkeir

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I was diagnosed when I was about 40

I realised I was autistic a few years earlier, with the help of the insight of a friend who knew me when I was young

My focus with getting diagnosed was getting access to a specialist, I'd heard plenty of horror stories and just wanted to get referred to a specialist without a generalist gatekeeping with nonsense like you can't be autistic you can make eye contact and make conversation that isn't about your special interest - I could have coped with being told that I wasn't autistic by someone who knew what they were talking about - so anyway I got a referral and I had no trouble convincing the specialist.


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Reply by Krimone

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I was professionally diagnosed with autism and adhd at 15yo (september 2022) but I figured I wasn't neurotypical a year before that!


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Reply by Leah ‼️‼️

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I was diagnosed at 4, I think, and I was the last child to get tested. This was mainly because girls are apparently (?) harder to diagnose, but I’m glad it was done at an earlier age! :3


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Reply by 𐔌 . grompy ⟢

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i got diagnosed recently! i was doing really bad at school and my mental health was like...rapidly depleting so my mummy decided to take me

she took me just for a silly evaluation..come to find out, i have autism AND adhd!! thats so craycray 


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Reply by Nqtz

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I got diagnosed at a very early age, around 3 or 4. my mom said I had shown obvious signs and got me tested!! I am high functioning and very creative and smart! :3


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Reply by Ph1n345 :P

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I was a quiet, silent meltdowns, smart kid when I was younger so my parents didn't rlly suspect anyting, It was only when I joined secondary school they noticed my symptoms :3 Got a formal diagnosis late last year


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Reply by KNIVES

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finally found out sometime in the last two yrs, idr exactly when. Because I'm well beyond most thresholds for assitance in my state (and the process is long, arduous and not rlly worth it here), I'm not chasing any sort of formal diagnosis.


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Reply by elijah ⛤

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i'm pretty sure i realized i was autistic at around 13. a lot of my friends r autistic but i guess i never looked into it cause i thought a lot of my own behaviors were just normal & not actually symptoms of autism. fast forward maybe a yr or so and i'm in therapy when my therapist catches on & starts asking me abt symptoms. she pretty much confirmed it LOL but she said in my country they don't rlly diagnose unless it's a more severe(???) case & the kid needs more accomodations in school than i do. it was pretty freeing & i was rlly happy that day that someone noticed lol


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Reply by hwdrlkh

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got diagnosed around when i was four thankfully, i have heard lots of stories of people getting diagnosed late and maybe even getting confused on their own behaviour until later on, which is really bad sometimes


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